Surveillance of Congenital Heart Defects Among Children, Adolescents, and Adults

Active
No
Status
Posted
Published Date
March 14th, 2024
Close Date
May 14th, 2024
Total Funding
$3,100,000.00
Award Ceiling
$800,000.00
Award Floor
$50,000.00
Expected No. Awards
8
Opportunity No.
CDC-RFA-DD-24-0051

Agency

Centers for Disease Control - NCBDDD (HHS-CDC-NCBDDD)

Eligible Applicants

Unrestricted

Funding Category

Health

Funding Instrument

Cooperative Agreement

Opportunity Category

Discretionary

Cost Sharing or Matching Requirement

Yes

Summary

The Centers for Disease Control - NCBDDD is seeking non-research, cooperative agreement applications for the surveillance of congenital heart defects (CHD) among children, adolescents, and adults. This project aims to describe health outcomes, including health equity, and identify opportunities to improve the health of individuals living with CHD. The surveillance activity will involve assessing survival, comorbidities, healthcare utilization, and characteristics associated with long-term outcomes among people with CHD. It will also examine state and national healthcare policies impacting people with CHD and explore the impact of COVID-19 on this population. Additionally, the project includes the development and refinement of a machine learning algorithm for the surveillance data collected. The deadline for electronically submitted applications is May 14, 2024, at 11:59 pm ET.

Description

Synopsis: NOFO # DD24-0051 solicits non-research, cooperative agreement applications to conduct population-based surveillance of congenital heart defects (CHD) to describe health outcomes including health equity, with the goal of identifying opportunities to improve the health of all people living with CHD. This project will involve a required component (A) and an optional component (B). The population included in this surveillance activity can be an entire state or a region within a state. Individuals with CHD should be identified through existing data sources including the jurisdiction birth defects surveillance system, electronic health records, administrative data (e.g., Medicaid/Medicare, hospital discharge), or other sources available to funding recipients. Background: Congenital heart defects (CHD) affect about 1% of all births in the United States, and are a leading cause of birth defect-associated infant mortality, morbidity, and healthcare costs. Improvements in early detection and treatment of CHD and consequently in survival have resulted in many people, including those affected by a severe CHD, living into adolescence and adulthood. An estimated two million persons in the U.S. are living with a CHD, including over one million adults; about 12% of these affected adults have a severe CHD. Most current efforts to conduct population-based surveillance of CHD have focused on monitoring newborns. However, little data exist on the descriptive epidemiology of CHD beyond early childhood in the U.S. Despite the public health burden, the lack of population-based surveillance precludes reliable data on people with CHD, their survival, healthcare utilization, and characteristics associated with long-term outcomes. Through this surveillance activity, these data will be assessed, enabling and informing efforts to improve the health and well-being of people with CHD. Objectives: Component A objectives include: (1) assess survival, comorbidities, healthcare utilization during the period 2021-2023, and characteristics associated with long-term outcomes among people with CHD; (2) assess health equity among people with CHD; (3) examine state and national healthcare policies that have an impact on people with CHD; (4) examine COVID-19 and related data such as health care utilization during the pandemic among people with CHD; and (5) work with local/state partners to use site-specific CHD data. Component B objectives include: (1) develop and refine a machine learning algorithm for the surveillance data collected through Component A; and (2) apply this machine learning algorithm to data collected from all recipients funded through Component A.

Contact Information

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Opportunity Lifecycle

Title
Type
Grant