Surveillance of Congenital Heart Defects Among Children, Adolescents, and Adults
ID: 350136Type: Posted
Overview

Buyer

Centers for Disease Control - NCBDDD (HHS-CDC-NCBDDD)

Award Range

$50K - $800K

Eligible Applicants

Unrestricted

Funding Category

Health

Funding Instrument

Cooperative Agreement

Opportunity Category

Discretionary

Cost Sharing or Matching Requirement

Yes

Original Source

https://grants.gov/search-results-detail/350136
Timeline
    Description

    The Centers for Disease Control and Prevention (CDC) is offering a funding opportunity for the "Surveillance of Congenital Heart Defects Among Children, Adolescents, and Adults" through a cooperative agreement. This initiative aims to conduct population-based surveillance to improve health outcomes and equity for individuals living with congenital heart defects (CHD), focusing on collecting and analyzing comprehensive data on health outcomes, healthcare utilization, and health equity. The program is particularly significant as it addresses the public health burden of CHD, which affects approximately 1% of all births in the U.S., and seeks to fill gaps in data regarding long-term outcomes for individuals with CHD. Interested applicants must submit their proposals by May 14, 2024, with funding amounts ranging from $50,000 to $800,000, and are encouraged to contact Justin Horhn at jgi7@cdc.gov for further information.

    Point(s) of Contact
    jgi7@cdc.gov
    Files
    Title
    Posted
    Appendix DD24-0051.pdf
    Appendix.pdf
    The document outlines the required data elements for the CDC's project "Surveillance of Congenital Heart Defects Among Children, Adolescents, and Adults" (CDC-RFA-DD-24-0051) set for March 2024. Its primary objective is to collect comprehensive demographic, health, and healthcare encounter data for individuals with congenital heart defects. The data elements include demographics (e.g., sex, marital status, ethnicity), medical history, maternal and paternal information, insurance details, and results from critical congenital heart disease screenings. Key sections specify required inputs such as cause and age at death, maternal characteristics at delivery, prenatal care details, and healthcare encounter information. The document emphasizes systematic data collection to enhance surveillance capabilities and improve public health understanding of congenital heart defects across diverse age groups. This analytical format aligns with federal or state grant proposals and RFPs by requiring extensive data reporting and compliance for ongoing public health initiatives. The strategic collection aims to inform future healthcare policies and ensure better outcomes for affected populations.
    DataElements_CHDSTAR2.docx
    The CDC-RFA-DD-24-0051 initiative focuses on the surveillance of congenital heart defects among individuals spanning infants to adults. This request for federal funding outlines the required data elements essential for comprehensive data collection. Key demographic information including sex, ethnicity, and race is mandated, while specific details such as date and location of birth or death are not required. A thorough collection of maternal and paternal health data, including ages, education levels, and insurance information, is necessary for informed monitoring. Healthcare encounter data must detail types of encounters, ICD diagnosis codes, and insurance types, while comprehensive Newborn Critical Congenital Heart Defects Screening data such as pulse oximetry results is also mandated. The document highlights the importance of accurate coding and registry information, emphasizing the CDC's commitment to tracking and ultimately improving outcomes for those affected by congenital heart defects. This structured approach ensures that valuable data is collected to enhance public health knowledge and intervention strategies over time.
    DD24-0051 NOFO_CHDSTAR2_InfoWebinar_3.18.24_NS.pdf
    DD24-0051.pdf
    The Centers for Disease Control and Prevention (CDC) has released a Notice of Funding Opportunity (NOFO) for the surveillance of congenital heart defects (CHD) affecting children, adolescents, and adults (CDC-RFA-DD-24-0051). This initiative focuses on conducting population-based surveillance to improve health outcomes and equity for individuals living with CHD. The funding will support two components: Component A, a required effort to identify, collect, manage, and analyze CHD data, and Component B, an optional effort to develop machine learning models using the data collected from Component A. The program aims to enhance knowledge about CHD characteristics, healthcare utilization, and health equity by utilizing various data sources for comprehensive surveillance. Applicants are expected to demonstrate organizational capacity, including partnerships, data management, and reporting capabilities. The anticipated funding includes up to $500,000 per year for Component A and $300,000 for Component B over a five-year period, with applications due by May 14, 2024. This project reflects the CDC's commitment to addressing the public health impact of congenital heart defects through improved surveillance and data-driven decision-making.
    FAQ_document.docx
    The document outlines a Notice of Funding Opportunity (NOFO) from the CDC for surveillance of congenital heart defects (CHDs) among individuals aged 0-64 years. The funding opportunity emphasizes the need for comprehensive population-based surveillance and encourages applicants to address various health-related aspects of CHD, including age-specific mortality and healthcare use. Key details include a recommendation for submitting a letter of intent by April 12, 2024, application components, and formatting requirements, including document length limitations of 15 pages for Component A and 19 pages for both components. The NOFO allows single PIs with co-investigators for multi-PI applications, and applicants must specify any limitations in data-sharing due to regulatory restrictions. Eligible applicants include organizations with access to birth defect registry data, with a focus on demonstrating the capacity to track and analyze CHD data effectively. The document provides specific guidance on budget submissions, narrative organization, and allows for citations as attachments. Overall, it aims to enhance the understanding and management of congenital heart defects through improved surveillance and data collection methodologies.
    QandA_document.bin
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