The NIA Data Linkage Program (LINKAGE) supports aging-related research by providing access to linked data from the Centers for Medicare & Medicaid Services (CMS) through the National Institute on Aging (NIA). The main objectives of the program include obtaining CMS data, processing it for research use, maintaining datasets, and facilitating user access while ensuring compliance with data security regulations.
The contractor will manage tasks such as reviewing requests for CMS data, performing data acquisition and linkage, creating research files, and distributing them securely to researchers. Additionally, the program focuses on enhancing data documentation, user training, and maintaining a public website for resources and support.
Key deliverables include regular updates on data processing, annual reports on data use agreements, and monthly assessments of user inquiries. The contractor is also responsible for ensuring compliance with federal security regulations, including annual audits and maintaining an Authority to Operate (ATO) status for cloud-based services. This comprehensive program aims to optimize data utility while promoting high-quality research on aging, leveraging the investment in high-quality datasets and fostering collaboration among researchers.
The NIA Data Linkage Sources Sought document outlines a request for information regarding organizations' capabilities in data linkage services. It seeks to assess experience in obtaining and linking federal datasets with other data, including private sources like electronic health records and claims data with personally identifiable information (PII). The document emphasizes the importance of security, specifically compliance with the Federal Information Security Management Act (FISMA) and the ability to establish secure enclaves for data sharing and analysis. It also asks about the costs associated with creating these secure environments and conducting necessary audits. Additionally, it inquires about the organizations' technical and project management expertise related to data linkage services. Overall, the purpose is to evaluate potential vendors for their qualifications in securely managing and linking sensitive data within a federal framework.